Sunday, 16 February 2014

Living arrows 7/52 - one little pirate jumping on the bed!

I've had a tough week with Ella, she's been stroppy, defiant and shouting when she's tired, frustrated or things aren't going her way. Learning how to handle her when she's like this and trying to decipher what's wrong has been a steep learning curve for me. I do think although her speech is improving, she's reached the point where she wants to say more but can't and she gets cross - her understanding is so much better than her ability to tell me what the problem is at the moment. 

But we've had fun and smiles too. Here's some pics from when I caught my cheeky little pirate jumping on the bed! 

Happy Monday everyone xx

Monday, 10 February 2014

Living arrows - 6/52

Loving watching Ella and Lucy's relationship develop. Ella at times can be bossy, reluctant to share, rough and there's a little jealousy creeping in now too. Lucy is beginning to assert herself when Ella removes her toys or is too rough with her - letting her sister know she doesn't like something by doing this cross little shout at her! 

For the most part, Lucy adores her big sister and Ella still loves cuddling and mothering Lucy. 

My girls xx

Wednesday, 5 February 2014

The Adventures of Max the Dog & Ella the Princess

My brother and sister in law wrote a book for Ella a while ago. It features her as well as some beloved family pets (Max the dog and Gordon the cat). 

My brother has spent many hours and lots of hard work turning the book into an app for the iPad. It's priced at a very affordable £1.99 with 10% going to Alder Hey which is where Ella had her heart surgery back in 2011. 

The story, illustrations and animations are lovely and 'Ella the princess' was traced from a picture of Ella so it's lovely to see a character with Down's Syndrome in a book without it being mentioned or focused upon (the 'King' & 'Queen' may look kind of familiar as well...!). The story is engaging and easy to follow for younger children and the app narrates the story for you.

You can download the book for the iPad here:

Read more about Max here:

A big thank you to Uncle Tommy & Aunty Vicki xx

Monday, 3 February 2014

Living arrows 5/52

Ella...a million and one things before she is a child with Down's syndrome. 

Sister, daughter, friend, mischief maker, banana fiend, puddle splasher, bookworm, hairbrush hater, Mr Tumble's No 1 fan, trampoline jumper, climber, cat lover and makeup artist...

My Ella bean xx

Sunday, 26 January 2014

Living Arrows 4/52 - sweet dreams

This weekend we decided to move Ella out of her cot bed (which we need for Lucy) and into a proper single bed.  I had no worries about the transition (other than she's growing up too fast!), Ella's been sleeping with the sides off the cotbed for a year now. She's still quite a mobile sleeper so the bed will give her more space to move around.

New sheets and a pillow are in place (she says 'pillow' in a very cute way!). She settled and slept really well, so far so good! And of course there's cat and snuggle too...

Lucy seems to like the cot bed, although not enough to sleep in it beyond 6am! So here she is wide awake in our room one morning...

           Sleep mummy??! Hahaha!

Monday, 20 January 2014

Living arrows 3/52 - Moving Up

This last week, Ella has moved up to the over 3's group at nursery.  She left the baby room 18 months ago and has continued to flourish since then.  And suddenly, she's become a real little girl now, certainly knows her own mind and lets us know it! She continues to make me proud every day.

I am also really proud of the staff at the nursery and so grateful for the time and effort they have put in with Ella.  Ella's key worker, Lucy took on the challenge of learning Makaton so that she could communicate more effectively with her. Makaton signs and symbols can now be found all over the nursery and they've incorporated it into everyday activities, including play and singing time. Ella's favourite is the 'hello song' where they sing hello to each child in a morning. Ella knows all her friends names and the other children have all learnt to communicate with Makaton too, it's lovely to see them all using it with Ella when they interact with her. 

Lucy has subsequently become a Makaton trainer and run a successful Makaton course for other parents at the nursery.  So many good things have come out of having Ella in a mainstream setting - for her and also importantly, for those around her.  And she has always been very happy there, as this weeks picture (which has pride of place on the fridge) shows.

My Big Girl xx

Sunday, 12 January 2014

Living Arrows 2/52- Lucy

This weeks pictures are of Lucy. I've been told she doesn't feature enough on the blog, which I guess is true being that Ella has dominated this space for the last 2 or so years... 

So Lucy and I have 3 days of the week together while Ella is at nursery. We go to baby sensory, swim, meet up with friends, run errands, do housework etc. I enjoy having time to spend with just her. Ella is 3, always on the go and in need of constant entertainment which can mean Lucy gets carried around a lot or left to entertain herself (which she is quite happy to do for the moment) while I do an activity with Ella. I feel I can make it up to her on the days when she has me to herself and she's still at the stage when a wooden spoon and a pan or foil blanket will keep her occupied, unlike Ella where I more likely have to get paints, play-doh or a sensory tub organised! I'm enjoying exploring new things with Lucy, just like I did with Ella. Still ticking off her 'firsts'. So here she is, showing off her new outfit in a mini and impromptu first 'photo shoot'!...


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