Showing posts with label Celebrate. Show all posts
Showing posts with label Celebrate. Show all posts

Tuesday, 30 December 2014

Another year over...

The presents have been opened, lots of food eaten and lots of fun with family has been had. Now the decorations are down as we say farewell to Christmas and await the beginning of a new year...  A good time to look back and reflect over 2014...


As the year began, I had a young baby and a toddler. Twelve months on, I now have a toddler and a pre-schooler! They still love one another as much though...

              January 2014                                                           December 2014

Over the last year, I've got involved and supported several causes, projects and campaigns.  Something I never thought would happen when I started writing the blog 4 years ago.  Here are some of the things I've got involved in during 2014 and look forward to continue giving my support to in 2015...

The Living Arrows project over at I heart Snapping...Taking a photo a week of what it means to have children in your life (OK so I didn't quite manage to keep up with this all year but I did enjoy taking part and I'll try and do better in 2015!).  So more Living Arrows starting in January.


Living Arrows photography project run by 'I heart snapping'

February is both congenital heart defect and also feeding tube awareness week.  We showed support (along with Ella's nursery friends) by wearing red for raising awareness of congenital heart defects and I shared and re-shared Ella's feeding story across social media again getting some lovely feedback (For those that haven't read it, you can do so here).  I made these named word clouds for Ella and her heart friends and these were used as profile pictures and shared across social media sites.  

                           
Congenital Heart Defect Awareness week 7-14th February

In March we donned our odd socks again to raise money for DS awareness day and Ella was featured in the 'Lose the Label' campaign.  The photography campaign was started by Michelle, mum to Mara who has Down's Syndrome.  She wanted to get the message of person first language across to people, to help others understand that people with DS are so much more than a diagnosis and that it does not define them. You can find the campaign pictures on her Facebook page Lose the Label...


I was again asked to take part in Mencap's Learning Disability week. This years focus was 'firsts' and I chose to write about the 'first' that has meant the most to me so far...Ella's first smile.  I also loved reading other contributors posts, especially those who have older children and are a few years ahead of us. We still have so many firsts to look forward to and celebrate... 


And this winter, I've supported the Matalan and Alder Hey charity campaign by wearing my alphabet scarf.  All proceeds from their sales go to the Alder Hey charity, one that I will always support after the care we all received while Ella had her heart surgery.  I've not been quick enough to get the girls their scarfs yet as they sell out so fast - I'll be quicker next time they're in stock!  

My #scarfie

And there's been a massive change in Ella over the last year too.  One of the great things about writing a blog is being able to go back and revisit where we have come from.  This year, she has grown in confidence, become a lot more grown up and has started her pre-school year at her new nursery before starting school next September.  Her communication continues to get better every week and she's now putting 2-3 word sentences together, telling stories and giving a narrative (just tonight she came and said 'Lucy dummy bath oh dear' telling me that Lucy had thrown her dummy in the bath).  Of course, Makaton continues to be an important communication tool as well and we've found that it has also helped Lucy to make herself understood and support her speech. We've made attempts at potty training Ella this year (I'll write a post on our efforts soon) but will revisit this again in the new year and have another go.  

She's become really good company with her ever present mischievous streak and wicked sense of humour... 

In June, I attended my first bloggers conference.  Attending Brit Mums Live was brilliant and I had a great time, even though I was nervous about going.  I met new people Kanchan 'intrepid misadventurer', Emma from +Adventures of Adam, Katrina aka +Mummy Whiskers  Amanda at 'The Family Patch', Carin at Artfully Carin and have loved reading their blogs over the last 6 months (even though I am bad at leaving comments - another New Years Resolution right there!).  I also finally met  in person the inspiring and charismatic Hayley from Downs Side Up.  There were a range of workshops to attend, brands galore as well as brilliant, empowering and emotional key note speeches (Emma Freud & Benjamin Brooks-Dutton).  A very inspiring and affirming couple of days - especially nice when meeting people you didn't know but you did know each others blogs.  You forget sometimes when you click the 'publish' button that people do sometimes stop by and read what you've written!  I'm looking forward to BritMums Live 2015 already...


In August I was honoured to be bridesmaid at the wedding of our good friends Nicola and Brian.  Ella was also given the honour of being a flower girl along with Rosie from The Future's Rosie.  We were put in touch with Nicola and Brian by our local Down's Syndrome group as they were facing heart surgery with their 6 month old son.  We had recently been through Ella's surgery and we went along to their house to meet them when Ella was about 8 months old.  We kept in touch and visited them at Alder Hey when Daniel had his surgery a few weeks later... And 4 years on and Ella and Daniel have grown up together and Nicola and I have become great friends.  A nanny by profession, Nicola also helps us with childcare - giving up her lie ins three mornings a week as I throw Ella and Lucy over her front doorstep at 7am so I can get to work on time (a million thank you's lovely lady) xxx


2014 has been a year of change and a year of collaboration.  There are lots of blogs about Down's Syndrome out there, all sharing experiences, telling a story and all seeking to challenge perceptions and educate society.  And by linking together as #TeamT21 we can be a bigger and more effective voice.  

Earlier in the year, I wrote these words...

"I know I am merely a drop in the ocean of change. But every drop creates a ripple. And along with all the other drops creating ripples we are collectively creating a wave.  

Together, we are a powerful force - changing attitudes, challenging preconceptions and raising awareness." 


As I mentioned earlier, in September, Ella started her new nursery.  She absolutely loves it and has settled in well.  We've made a decision about which school we'd like to send her to next September and the first steps have been made to put in place a Educational Health Care Plan for her.  In starting her new nursery, we had to say an emotional farewell to the day nursery at my work she had been attending since she was 9 months old.  I will never be able to thank the staff enough for their input with Ella during her early years (and their continued care of Lucy too!).  It was only fitting that after their recent OFSTED inspection that the nursery received a rating of outstanding...   


The two nursery workers who are Makaton tutors

And the blog, along with lots of other things has had to take more of a back seat this year. Ian is currently working away from home having a go at his dream job with the Essex & Herts Air Ambulance.  So I've been thrown into life as a part-time single mum which doesn't leave much time for, well anything! I certainly have a lot more respect and admiration for all my single-parent friends - I don't know how you do it. I also took on some new challenges at work, so life has been anything but quiet over the last 6 months.  Hopefully more time for writing and blog related activities next year.

                                      

                                      

We've packed a lot in this year and I get the feeling 2015 will be just as hectic!  



Happy New Year everyone xx



2014 
In loving memory of three influential and lovely ladies who we lost this year
Gran Tyrrell
Granny Judson
Grandma Marsh
XxX

Sunday, 29 December 2013

Looking back...

I know it wont be the same for everyone, but for us, on the whole 2013 was a good year. This time last year, I was announcing my pregnancy, Ella was just taking her first steps alone and the house was in absolute chaos as we renovated the downstairs rooms.

Now we have a 7 month old baby, a walking/talking/signing whirlwind of a little girl and a house that's now a home.  And all that via hard work, too many sleepless nights and a lot of tears and laughter (in almost equal measure!).





A year in pictures...


12 months, 52 weeks, 365 days condensed into just 12 snapshots.... It's been good looking back at 2013.  Choosing and looking through all the pictures from the past year got me thinking.  If I could choose just one picture to sum up 2013, which one would it be? 

It's strange to think that one captured moment could define an entire year.  This year, it was an easy one to pick out from the hundreds I had to choose from.  In fact, I knew as soon as I'd posed myself the question which one it would be.  For me, it doesn't just represent 2013 - it's a split second that defines so much more and one that I'll remember forever... 

It's that first cuddle between two special sisters.  A big sister who literally grew up overnight and a little sister who seemed instantly content in the arms of her sibling.  I took many pictures of Ella and Lucy's introduction but this one is my favourite.  It's not perfect in many ways -no smiles, Ella's hair is a mess, Lucy is asleep... but the look on Ella's face sums up the old saying perfectly...

'A picture is worth a thousand words'

What picture would you choose to sum up your year?

2013 on the blog...

I finally got around to writing Ella's feeding story - it's the post on the blog that I've received the most comments and feedback on.  It's good that sharing our story is having a positive impact and giving hope to others.  I wish I'd been able to read other people's stories and experiences when we were going through all the struggles in the early days with Ella.

In March we raised a lot of money for our local DS support group during Down's Syndrome awareness week.  It was all with help from a lot of you and your odd socks - thank you again for your pictures, time and donations!

  
I was honoured to be part of raising awareness when asked by Mencap to take part in their Learning Disability Week - you can read my 'Superheroes' post here



A Different View is also now linked with the NHS choices initiative - 'Talk Health'.  They publish all my posts so that they are available to anyone wanting to find out more about Down's Syndrome.  That could be a student, health professional or, more crucially a new parent or parent to be.  

It was also a lovely surprise for the blog to be recently featured on the Down Syndrome Centre (Ireland) website. A big thank you - you can read their feature here

So, very briefly, that was our 2013.  And we can only hope at this point that 2014 will be another good year.  We already know we have some challenges ahead of us in the coming year - all helps to keep life interesting!  

Happy New Year everyone xx 






Tuesday, 26 November 2013

Happy Birthday Ella xx

Very busy 3 year old... wouldn't stay still for any photos!  



Birthday post coming soon after the weekend's celebrations with family xx


Now you are three xx

Wednesday, 9 October 2013

Down's Syndrome Awareness Month Day 9

Hayley from Downs Side Up has written an article for Special Needs Jungle. It's a great read and helps dispel some myths surrounding Down's Syndrome. 

Comments from others are generally well meaning but having been on the receiving end of some of them, they can actually do a lot of damage. 

I remember being in Boots with Ella when she was about 5 months old as she still had her NG tube (which was always a conversation starter). I got talking to a woman behind me in the queue and when I told her Ella had Down's Syndrome she said 'didn't you know you can test for that?' - her throw away comment implying that Ella shouldn't have been born. I don't remember my reply but the fact that a total stranger could not only think that, but say it to me upset me for a long time afterwards.

On the whole, we've been lucky and not had many negative comments so far. Most people treat Ella just as they do any other toddler, she's sociable, interested in the world around her and engages easily with others - I think people simply take their lead from her xx


Natty xx


Special Needs Jungle

Monday, 23 September 2013

Flower Power!

Last weekend, Ella and Lucy were the flower girls at my brothers wedding.  They wore beautiful matching dresses, sparkly shoes and Ella had a lovely heart adorned with bells to carry instead of flowers.  Although she didn't fully understand what was going on, Ella loved having lots of family around and it was good to introduce Lucy to members of the family who hadn't met her yet.

I was a very proud sister and mummy as I walked down the aisle with my girls (even though Ella dropped the heart, sat down, refused to get up, tried to escape down the empty pews....we got there in the end!). 

The whole day was lovely - Tom & Vicki had organised everything so well... Thank you gifts, the old London bus for transport to the reception and the surprise choir they organised as part of the ceremony.  And Ella once again took to the dance floor in the evening (in her pyjamas and after a power nap on daddy to recharge her batteries!).   

This is another post where the pictures of the day explain how lovely it was better than I can with words...









         



 
 








Choir, singing a great rendition of 'Mardy Bum'!


Vows...



Cookies and milkshakes followed the ceremony...



Double decker bus!...






Fun masks and props for taking polaroid pics!


Speeches...



My Beautiful thank you gift...




I'll leave you with one of the readings from the church, the words of Dr Suess...


We’re all a little weird. And life is weird. 
And when we find someone

whose weirdness is compatible with ours, 
we join up with them and fall into
mutual weirdness and call it love

Congratulations Tom & Vicki xxx





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