Thursday, 30 June 2016

I See...

I look at these photographs and see so many things... 



I see my little artist drawing - one of her favourite things to do. 

I see her concentration and focus on the task at hand. 

I see a lovely three point pen grip, fine motor skills in action. 

I see a story being told and ideas coming to life. The picture she is drawing has meaning to Ella and she can tell me what it is - she now knows what she will draw before she starts and is no longer just making marks or shapes on the paper. 

I see a picture that is also recognisable to others - figures with faces and bodies with arms and legs. 

I see a pirate and a treasure map (if you were wondering!) - complete with an 'x marks the spot'. Pirates are the theme this half term at school and she's definitely enjoying the experience - an added 'aaaarrrr' as she draws the pirate (complete with hat). 

I see how far she has come during her first year at school, what she has achieved and how hard she has worked. As reception comes to an end and we begin to prepare her for Year 1 and a more structured approach to learning, I wonder (worry) how she will cope with the transition. We have her annual EHCP (Education, Health and Care Plan) review next week and my list of things to discuss and questions to ask is already fairly long with many more flying round my head and keeping me awake at night. I know she has every reason to keep progressing, growing, learning and being happy at school. She has lovely friends and teachers and enjoys being there.

I see potential, expectations and hopes.

I see Ella xx

Wednesday, 22 June 2016

Heart MOT

It's been 5 years since Ella had her heart surgery at Alder Hey. 


We celebrated her 'heart day' just a few weeks ago with a bit of quiet reflection, lots of thankfulness and of course, cake...


Today we went back for her routine cardiac follow up appointment at Manchester Children's Hospital. It's been nearly 2 years since she last had a check up or 'heart MOT'.  

Although she's very well in herself and not showing any outward signs that her heart is anything but happy, it's always the appointment that I worry about the most. You just can't take everything being well for granted until the professionals have checked what's going on on the inside. 

We worry about her heart function, whether it's coping with her growth and growing with her. We worry about her heart's electrical function and also about the pressures in her heart, arteries and vessels. We are lucky that she isn't on any heart medications at all but I guess there is again a worry that she may need to be in the future. 

Ella was a little superstar today, considering she won't have remembered the last time she was there. She made no fuss, lay herself on the bed and stayed really still while the doctor performed the ultrasound of her heart (ECHO), which was apparently 'tickly'. 

There was no requirement for dvd/phone distraction or constant supply of chocolate buttons like at the last appointment! She was equally as good during her ECG and even removed the stickers herself (ouch).

Thankfully I can report that after her tests today, all is well and we have been asked to go back again in 18months time. Our little warrior has a happy and healthy heart. 

*big sigh of relief*



Happy Wednesday everyone xx
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