Wednesday, 22 June 2016

Heart MOT

It's been 5 years since Ella had her heart surgery at Alder Hey. 


We celebrated her 'heart day' just a few weeks ago with a bit of quiet reflection, lots of thankfulness and of course, cake...


Today we went back for her routine cardiac follow up appointment at Manchester Children's Hospital. It's been nearly 2 years since she last had a check up or 'heart MOT'.  

Although she's very well in herself and not showing any outward signs that her heart is anything but happy, it's always the appointment that I worry about the most. You just can't take everything being well for granted until the professionals have checked what's going on on the inside. 

We worry about her heart function, whether it's coping with her growth and growing with her. We worry about her heart's electrical function and also about the pressures in her heart, arteries and vessels. We are lucky that she isn't on any heart medications at all but I guess there is again a worry that she may need to be in the future. 

Ella was a little superstar today, considering she won't have remembered the last time she was there. She made no fuss, lay herself on the bed and stayed really still while the doctor performed the ultrasound of her heart (ECHO), which was apparently 'tickly'. 

There was no requirement for dvd/phone distraction or constant supply of chocolate buttons like at the last appointment! She was equally as good during her ECG and even removed the stickers herself (ouch).

Thankfully I can report that after her tests today, all is well and we have been asked to go back again in 18months time. Our little warrior has a happy and healthy heart. 

*big sigh of relief*



Happy Wednesday everyone xx

6 comments:

  1. Glad that thing are looking good! She is such a beautiful girl xx

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  2. Oh my goodness! This is the kind of post that makes me want to go and give my girls a huge hug and remember to be so grateful. You have such a brave little girl and you must be such an amazing mother to go through this worry on top of the general stresses and strains of motherhood. Lots of luck and love to you x

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  3. such a beautiful little girl, much love to you all xx

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  4. Oh gosh, what a scary time, I can't imagine. I'm so glad all is well and you can have cake :-)

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  5. Great news, what a superstar she is! X

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  6. what a beautiful little girl you have and such a brave , strong child xx

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