Friday, 25 September 2015

Ready for the School run...

Ella's been in school for 3 weeks now. She has settled well, is participating activities and learning along side her peers. She loves her teacher, giving her a big hug as a greeting each morning. 

She knows where her peg is and is getting better at hanging up her coat by herself. She can put her book bag in the correct box with some help and can find the correct basket for her water bottle to go in, again with prompting. These are all things that she does every day so the repetition is good for helping her to consolidate these tasks in her long term memory. I am confident she will be doing these three tasks independently before long.

I quickly realised that I needed to be more organised in terms of school uniform (she comes out so grubby that I'm washing every item she wears almost every day!), what Ella needs to take with her each day and remembering to return any forms or letters that need signing.

This starting school malarkey has been as much of a learning curve for me as it has been for Ella! 

I began thinking about what I could do to help me be more organised and more able to get everyone out of the door at 8.30am every morning. And there's also the days that I don't take her to school when Ian/the nanny/granny takes her. My method of organisation has to work for whoever is doing the school drop off and on whatever day of the week that may be. 

I also realised that being organised is about Ella. Therefore, in the long term it should also be something that works on her level too and benefits her in terms of her independence and her confidence in doing things for herself. 

And then I remembered a post I had seen on Facebook, a mum of 7 kids who had bought a set of plastic drawers for each of her children, that sat in her hallway. 5 drawers in each set, one drawer for every day of the week. Socks and pants for everyday are a given but then there's PE kits on different days, after school activities and other variables to factor in (I'm feeling marginally inadequate at this point that I'm struggling to organise one child, let alone 7!).

So I stole the plastic drawers idea and added a twist to make it more tailored to Ella, the way she learns (visually) and by linking it to something already in place at school. 

Our drawers are coloured, a different coloured drawer for each day of the week. 

At Charnwood (Ella's preschool), they associated a different colour with the different days of the week. And seeing as Bianca (the SEN teacher) has moved from Charnwood to Ella's primary school, they have adopted the concept too, for familiarity and continuity...


I've always known that Friday was 'blue' day as Ella always says 'Friday, blue day, granny' because granny always collects her on a Friday. Her favourite day!

So here is what I've done with our drawers... 

So, apart from Tuesday's drawer being the wrong colour, they're actually pretty close to the correct colours for the days of the week. A printer, laminator, a pair of scissors and some glue later and the days of the week are now on each drawer front... 

There's space on top to put her water bottle and glasses (which she will not wear once she's finished school for the day). I've currently added a bulldog clip as a makeshift hook for her book bag but will change this to something more Ella friendly soon...



We will see how it works in practice next week but hopefully being able to put a clean polo shirt, socks and pull-up into each drawer as a starting point for the week ahead has to be better than nothing! I will report back and let you know how they are working and how Ella benefits from them over time.

Happy weekend everyone (especially all those fellow parents who do the school run, enjoy your 'days off'!) xx

Monday, 21 September 2015

Proud Moments - {September 2015}

There's a lovely little thing that happens every month in the 'Future of Downs' Facebook group. 


We celebrate our children's milestones and share what's made us proud. We do this on the 21st to represent the three copies of chromosome 21 present in Down's syndrome.And there's no such thing as an achievement too small. 
There's a whole lot of love and pride bursting from the members every month - and quite rightly! 
Proud moments happen everyday.  I'll be sharing ours on the 21st of each month. 

As this is September, it seems only fitting that this month's proud moment is school related! 

Ella is now in her 3rd week of reception. She bounced in that first afternoon two weeks ago, headed straight for the sand tray and hasn't looked back. One week of afternoons and one full week later and she is doing great. She seems to have settled really well and is getting the help she needs when she needs it. 

She goes in looking mostly presentable most mornings and comes out at 3.15pm covered in mud, paint, glue and general grub - all signs that she's had a great day! 

Very proud of how she has adjusted to being at school and how well she is doing...


Thursday, 3 September 2015

Starting school

On Monday, Ella's next adventure begins...  


The Education Health and Care Plan has been finalised, the school uniform bought and my head is fit to explode with equal measures of pride, worry and love.

My big girl is going to school. And I reckon she is going to be amazing.  

I have seen such a change in her over the last few weeks.  She is getting more independent at dressing herself, can do forward rolls, will wear her glasses without fuss for most of the day and has started storytelling/talking about things we have done. Her speech in general has become much clearer and she's using lots of new words and phrases. 

She is taller, more confident, more chatty and I can see she is very ready to start school.  

And she will be going to our local mainstream primary school. Something that seemed so uncertain and so far away almost 5 years ago when we were told Ella's diagnosis.

And the children starting this September will have such a different and enriched education. Along with Ella, there are also 6 other children with varying additional needs starting  at the school in reception this year.  The school has embraced this unprecedented challenge and have been very supportive and understanding of Ella's needs and our worries/concerns as her parents as I am sure they have with the other families too. They know our children have as much to teach as they do to learn.  I still have lots of worries about how they will meet each individual child's needs and how the support for each child will work in practice. It's just all new and unknown for us and seems so much more of jump than her previous move from nursery to pre-school. 
  
Ella's teacher at pre-school was brilliant. She knew, loved and nurtured every single child she taught no matter their abilities. She ensured that everything possible was done to allow each child to flourish and to start them on the path to reaching their potential.  When she came to me one afternoon before the end of Ella's last term at Charnwood to tell me she had a new job, I was shocked and sad to hear that she would be leaving.  That all changed when she explained that she had got a job as the Special Educational Needs teacher at the primary school Ella and several of the other children were moving to.  I can't tell you how much it means that she will be there with them all.  She knows them, knows their personalities, their temperaments and how they learn best.  She is a perfect advocate for them and Ella absolutely loves her. Without Bianca there, I know that this experience would be a lot more daunting.  

In so many ways I just want Ella to stay little. So I can keep her safe and protected and loved - always. I'm also very excited for her and full of anticipation and expectations. 

Reading, writing, maths may not be easy for her and may never come. But I know she will try her hardest with all the new challenges school will bring, like she has always done. 

The main goal is that she is happy in her new school - then anything is possible


Good luck Ella Bean xxx 
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