Monday, 23 September 2013

Flower Power!

Last weekend, Ella and Lucy were the flower girls at my brothers wedding.  They wore beautiful matching dresses, sparkly shoes and Ella had a lovely heart adorned with bells to carry instead of flowers.  Although she didn't fully understand what was going on, Ella loved having lots of family around and it was good to introduce Lucy to members of the family who hadn't met her yet.

I was a very proud sister and mummy as I walked down the aisle with my girls (even though Ella dropped the heart, sat down, refused to get up, tried to escape down the empty pews....we got there in the end!). 

The whole day was lovely - Tom & Vicki had organised everything so well... Thank you gifts, the old London bus for transport to the reception and the surprise choir they organised as part of the ceremony.  And Ella once again took to the dance floor in the evening (in her pyjamas and after a power nap on daddy to recharge her batteries!).   

This is another post where the pictures of the day explain how lovely it was better than I can with words...









         



 
 








Choir, singing a great rendition of 'Mardy Bum'!


Vows...



Cookies and milkshakes followed the ceremony...



Double decker bus!...






Fun masks and props for taking polaroid pics!


Speeches...



My Beautiful thank you gift...




I'll leave you with one of the readings from the church, the words of Dr Suess...


We’re all a little weird. And life is weird. 
And when we find someone

whose weirdness is compatible with ours, 
we join up with them and fall into
mutual weirdness and call it love

Congratulations Tom & Vicki xxx





Sunday, 22 September 2013

Heart check-up

In the early days, when Ella was a baby there were lots of appointments. So many in fact that it was impossible to plan the weeks activities. In those first few months Ella spent more time in hospital waiting rooms, clinics and therapy sessions rather than doing fun stuff. Excitement and happiness at being new parents was for the most part overshadowed by worry and stress. Since having Lucy I have realised how medicalised Ella's first few months were. 

We still joined swimming classes, baby sensory and baby massage but looking back we missed more sessions than we attended. She missed out on splashing, singing, playing and mixing with her peers because she needed an ECG, change in heart medication, visit from community nurse, speech therapy, physio, paediatrician appointment, blood test, ECHO, play therapist, dietician, GP, feeding company delivery, eye test, hearing tests, ENT appointment, a stay in hospital. We knew these appointments were necessary but at the same time I wanted her to experience all the things I had imagined I would do with her before she had arrived. 

At the time I couldn't see past the constant wall of appointments - it seemed like this was going to be her life forever.   As quickly as you could tick off a check-up or test, another appointment letter or two had landed on the doormat. However, I am pleased to say that as time went on, things began to improve and my calendar finally had more social events in it than pending hospital/home visits (especially post her heart surgery, which was the major turning point for her health wise).  She now sees the paediatrician, cardiologist and ENT yearly.  Eyes and ears are tested more regularly and speech therapy is currently fortnightly. 

Last week she had her yearly heart check-up. Always a worrying appointment to attend even though we know she is well and there are no outward signs that her heart is not functioning well.  It's definitely the check-up that causes me the most anxiety.

She is now 2 years post surgery and structurally her heart is good - her holes were successfully closed, blood flow is good and her valves work as they should.  However, the ECG done as part of her check-up showed a slight slowing in the electrical pathway in her heart (known as 1st degree heart block - relatively common following the repair surgery Ella had).  


A 30 second ECG is only a snapshot of what the heart is doing so a 24hr recording of her heart was needed (24hr ECG) to see what is going on over a longer period of time.  She had the wires and recorder attached this week (they didn't bother her too much - apart from removing the ECG stickers....) and we now await for the tape to be analysed by her cardiac team... 

Ella takes these things all in her stride although she is becoming more aware of what's going on.  Mr Tumble DVD was required to keep her occupied and distracted during the ECHO this time and keeping her still for the ECG was also a challenge.

We hope to get the results soon and if all is well the letter for her 2014 'heart MOT' has already arrived in the post!




Tuesday, 3 September 2013

Dancing Queen

It's becoming more and more apparent that Ella likes music.  

We went to a wedding on Saturday and she loved the post ceremony entertainment of singer and keyboard player.  By the end of the third song she was in the tent with them, did a bit of dancing with the singer but decided the keyboard was much more her thing...




He was very encouraging of her interest and even let her have a go (so the guests were treated to a version of 'My Funny Valentine' with quite a few bum notes!!)... 



Then as the newly wedded couple took to the dance floor, Ella had to be physically restrained by daddy for the whole of the first dance.  

She then stole the show with her dancing and didn't stop until she literally fell asleep about 10pm! 


Too dark for lots of pics but I'll leave you with a couple from our walk around Blagdon Lake on Sunday morning...









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