Sunday, 27 January 2013


I had no idea I was waiting for it or how much it would mean to me.  One little word said millions of times a day all over the world...
This week for the first time, Ella said 'mama'.  She's been using the sign for a while but this was the first time she's used the word as well.

She was sat on our bed with us and signed and said 'da' (daddy - which she's been doing for a while now).  She then turned to me, signed and said 'mama' then gave me a hug.

Heart melting stuff! 

I have always expected that Ella's speech would be delayed, but just like everything else I've known she will get there in her own time and (in true Ella style) in her own way.

To help with her speech, other ways of communicating to help enhance her developing skills have been employed from a very early age.   These include makaton signing, picture cards and giving her adequate time to respond to requests and questions.  

I have also started naming anything and everything (including the use of the sign where it's known) and I always repeat what she has said back to her to acknowledge that I have understood her (and hopefully this will help with her ability to pronounce words correctly, which is something she already struggles with).  She's really got the hang of copying now so picks up new signs easily.  She can then also use newly acquired (and not well practised) signs in context, sometimes days later.  

She has always loved her books too, which I think has generally helped her signing, talking and communicating...

Being a mum is a wonderful thing, but it takes on a whole new meaning when that one little word - 'mama' - is used by your child.

In other news, she's now walking much more confidently - mostly around the house but reports from nursery suggest she's getting braver there too.  Really need eyes in the back of my head now! 

We have also recently taken the side off her cot (my expanding bump was making it difficult to lift her in and out and we felt it was time to give it a try).  So far so good - she's quite happy to climb onto the bed but hasn't attempted to get out (yet!), possibly too difficult in her sleeping bag or she just doesn't realise she can get down herself...

So I'll leave you with Ella (complete with lots of self-applause) doing some signs with daddy...

Have a good week everyone xx

March 21st 2013 is World Downs Syndrome day.  More details coming soon!...


  1. Straight to business... a few things.
    1. I have tears in my eyes reading about going to Holland (and a weird twist is that I did actually sit down to look at eurostar prices to Amsterdam).
    2. My son has been driving me mad going 'Mummy, Mummy, Mummy' all day. So I've already got a different view from your blog, and as much as I could easily have started moaning about his incessant bugging I do love being 'Mummy', (and dread being Mum) I wish I could remember the first time. So lovely that it was followed by a hug too.
    3. You asked me a what floorboard varnish we used in our sitting room - it's Diamond Glaze in Antique Pine. Does that mean you're doing some DIY... I'll have to poke about your blog further and see - but I've got a feeling I'm really going to enjoy doing that - and I probably won't get around to booking eurostar to Amsterdam, so thanks for saving me a bit of cash there!

    1. Alexis, thank you so much for your lovely comment, hope you do enjoy poking around a bit more! And thanks for the floor varnish info, we sat down to google floor varnish last night got looking at pictures and found your blog. As soon as I saw the pic I knew that was the colour floorboards I wanted. We are currently redecorating lounge/dining room so a small amount of work going on (!).

  2. Dear Amy,

    My name is Daiane Goulart. I Study BA (hons) Design in Products and Interaction at Ravensbourne College of Design and Comunication. I am writing to you to speak about Ella. I am designing an Interactive Toy (sort of 'Radio Drum' with interactive music and games) as my final project for this term at University.
    My User group is Special Children. A lot of research has been already done about Down Syndrome. The product is been developed and a few changes need to be added, such as colours, set of bottons and handle.
    I am mostly interested about her motore coordination, in how Rosie reacts to music and colours.
    Therefore, I am looking for ways to expand my vision about how I could make this product better. I would like to kindly ask if we could have a chat via e-mail or Skype.
    The outcome of this short experience could be beneficial for both of us. I will also have to provide feedback to my University group about my progress, a process which would expand our knowledge; becoming better students, better interns and ultimately better designers.

    My University website:

    Thank you for your time, I look forward to your reply.

    Kind Regards,

  3. Hi Daiane,
    Your project sounds interesting. I will email you in the next few days and will do my best to help

  4. Me again :) I've just completed a Makaton training course with the hospital play team that I also volunteer with. It's so lovely to see in it action and really making a difference. Just love your blog.

    1. Thank you and have fun with the Makaton, it's a really valuable tool and wish I had time for formal training. Mr Tumble DVD's and makaton charity is where I learn all mine! Xx


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