Wednesday, 15 August 2012

Messy business...

It's taken some time but Ella has recently started taking an interest in feeding herself.  At the moment, this lasts for two to three spoonfuls and then she reverts to using her hands.  Which is all well and good, unless you're attempting to eat porridge... mealtimes can get rather messy!...






Who said you can't eat porridge with your hands?...






It still amazes me how far Ella has come with her feeding.  We struggled from the very start.   We are here today via NG tube, oral aversion, open heart surgery and a gastrostomy.  She will get there, she's come so far already!  

Most amazingly development wise, she can now drink from a straw.  She never sucked as a baby and it's a really important skill required for speech and language development in all children (uses and tones the muscles used for speech).  I was up for the challenge of teaching her this skill and decided to introduce her to it and see how we got on.  

No teaching required.  She just put it in her mouth and knew what to do with it (along with some gentle squeezing of the carton by Aunty Vicky to start with). 

We will never get tired of watching her do this - there was a lot of heartache at the very beginning over not being able to breastfeed and the struggle with bottle feeding that led to her being NG fed...


In other news, Ella continues to communicate well and I find myself adding new signs and words to her display every week.  Her most recent sign is 'baby/doll' which I didn't know she knew.  We got home from nursery and she pointed at her doll and did the sign for 'baby'...

I have also spent an entire evening cutting and laminating the 'see and learn' picture card resources.  We have started using them with the suggested activities and so far so good...


She's also been standing unsupported for a few seconds, still loves being on her trike and has been having fun with herself the mirror...






We've also been witnessing a new style of 'crawling' recently...

And a lot of 'oooops'....

Thanks for reading xx





2 comments:

  1. Hi there. Love your blog, so much resonates with me as i too have an Ella with ds who is 7 mths. I read about your Ella learning to drink from a cup by 9 mths and wondered if you had any tips as it's something we need to master?? Thanks!!

    ReplyDelete
  2. Hi, sorry for the delay in reply. With Ella being NG dependent and not taking anything orally we were conscious that she needed as much oral stimulation as possible. She lost her sucking ability and got a heightened gag reflex and we worked hard with SALT to overcome this. Once we were able to wean her we offered her milk from the flexi-cup at the beginning of every milk feed during the day (she was probably about 6 months at this stage). She then got the rest of the feed via her PEG tube. We thickened the fluid in the cup so she had more time to form a bolus and co-ordinate her swallowing (her swallow was always ok and the thickener was just to slow fluid down for her). So it was good old perseverance and patience. It took a few months but she slowly began to take more and more of her feed from the cup as time went on. And there were days when I wondered what the point in trying her with the cup was but I only caved to those negative feelings a handful of times so we really did push her! Hope that helps a little, if you want any more info please ask
    Amy x

    ReplyDelete

Related Posts Plugin for WordPress, Blogger...